Online family carer community

Topics discussed

• Useful resources
  • Transition into adulthood – The Down’s Syndrome Association has created a Transition into Adulthood guide, packed with useful information for young people moving into adulthood. While written for those who have Down’s syndrome, much of it will be helpful for anyone supporting a young person with a learning disability. Find out more. 
  • Finding support – Many parents tell us it’s hard to find counsellors who understand the challenges of SEND parenting. The Counselling Directory may help you connect with specialist counsellors who have this experience.
• July's meeting
  • Ongoing need for clear information and planning around future care, particularly in the event of a parent’s death
  • Parents are finding it difficult to locate knowledgeable specialist counsellors who understand SEND parenting. If you are looking for specialist counsellors, you may find the Counselling-Directory useful
  • Complexities when care is funded by a different local authority, including delays, missed opportunities, and additional family stress
  • Concerns around future funding structures and the impact of political changes on services
  • Ongoing difficulties in recruiting and retaining appropriately skilled and motivated support staff
  • Frustrations around professionalism and communication within social care services
  • Desire for clearer guidance on the transition from young person to adult services – including key contacts and next steps
  • Signposting to relevant counselling resources, including tips for finding the right professional support